Mystery teen illness: Brokovich team meets resistance

Jan. 29 update: Famed environmental activist Erin Brokovich met resistance as her team tried to test the area around an upstate New York school for clues to a case involving more than a dozen teens plagued by mysterious Tourette's-like symptoms and seizures.

At the request of local parents, Brokovich sent a team to LeRoy High School Saturday to investigate possible environmental causes for the  illness that has caused a group of girls to develop tics and involuntary verbal outbursts. One neurologist who has seen most of the affected girls has diagnosed their illness as psychological in origin, but some parents and members of the community have disputed that diagnosis.

The State Health Department has tested the school and ruled out environmental factors. But Brockovich plans to do more testing near the school in LeRoy, N.Y.

Brockovich told USA TODAY Friday that she is looking into a 1970 train accident that spilled cyanide and an industrial solvent called trichloroethene close to the site of the school.

Bob Bowcock, a member of Brokovich's team, came to LeRoy from California, NBC News reported. 

Bowcock looked at ground water and soil at a nearby park for anything out of the ordinary. "I'm just looking at the environment. I'm trying to see where things drain to. What types of soils they are," Bowcock told NBC News.

However, the school placed locks on all the entrances to the sports field, NBC's Rochester, NY, station reported Saturday. Local police and a school security guard initially refused to allow the Brokovich crew on school grounds until the school superintendent and a district spokesman arrived. Officials agreed to let parents, Bowcock and his team walk the grounds, without media, as long as they didn't take any samples.

Originally published Jan. 26: The mystery surrounding the strange illness that has struck a group of teenage girls in upstate New York deepened this week as more teens developed the same Tourette’s-like symptoms.

Dr. Laszlo Mechtler, the neurologist who has seen and is treating 10 of the 12 girls originally struck by the puzzling illness, told NBC’s Amy Robach that more girls had recently reached out to him.

One of those girls, Chelsey Dummars, told Robach how those symptoms have changed her life.

“I was doing things,” Dummars said, her words punctuated by tics and grunts. “I was going places a lot before this happened. Now I don’t feel like even going to stores because I feel like people look at me and judge me.”

Related stories:
Doctor offers new details on mystery illness
What is mass hysteria?
Girls' illness baffles doctors
School district's statement and environmental reports

Dummars said she’s now being home-schooled because she doesn’t want to go out in public with her symptoms.

Like many of the parents of the affected girls, Dummars’s dad is distraught.

“To see her sit there and be broken to tears because she can’t handle it anymore … it rips your heart out,” said Dave Watson.

The mystery illness surfaced several months ago when 12 girls who had been attending the Le Roy high school began to display tics and involuntary verbal outbursts. Both the state and the local school district did extensive testing of the school grounds to see if there might be any signs of an infectious disease or some toxin the girls might have come in contact with. All those tests came back negative.

Mechtler has diagnosed the girls as having a rare condition called mass psychogenic illness, more familiarly known as mass hysteria. It doesn’t mean that their symptoms aren’t real, and painful – merely that they’re psychological in origin.

“This is a subconscious effect that occurs in patients who may be prone to anxiety or mood disorders,” Mechtler told TODAY’s Matt Lauer. “But these are definitely real symptoms.”

Mass psychogenic illness is a kind of conversion disorder, Robach reported. Conversion disorders occur when psychological stresses start to be expressed as physical symptoms.

The National Institute of Neurological Disorders and Stroke, NINDS, is currently conducting research on conversion disorders and is running a clinical trial to investigate uncontrollable shaking in people who have no known underlying brain or medical disorder.

The Le Roy students would be eligible to enroll in the trial, but officials can’t say whether any of them have signed up.

Regardless, not all the girls have accepted the diagnosis of mass psychogenic illness.

One of the original 12, Thera Sanchez, told TODAY, “I’m frustrated. No one’s giving us answers.” 

NBC's WHEC contributed to this report

What do you think of the latest twist in this tale? Sound off on our TODAY Health Facebook page.

 

This discussion is closed.

Discuss this post

OK, take off your cynic, roll-your-eyes hat for a minute and think about this: The situation of the girls in the New York high school all with "tics", screams of past-life trauma. To those of us who have studied this (and yes, it is a study; there are several "closet" past-life therapists out there, psychiatrists and psychologists), it is a viable explanation. People tend to "come back", or reincarnate if you will, in the same groups, for a number of reasons. In short, these girls might have all been together in some other life, had a traumatic experience together, and something — an event, possibly seemingly insignificant, or perhaps just turning a certain age together — sparked a reaction common to their previous experience. Having them visit a qualified past-life regressionist, either as a group or individually, might unlock the door to their solution. Sounds ridiculously simple, yes, but why does it have to be complicated? — because a medical doctor can't explain it?

Since nothing else seems to have worked, don't knock it. It couldn't hurt, and it certainly could help. And so it flies in the face of all that the medical community holds true and dear, it is time we start looking into things not explained by a blood test, or suppressed (and certainly not cured) by a pill.

Humbly submitted,

Francesca

  • 24 votes
Reply#1 - Thu Jan 26, 2012 11:48 AM EST

Francesca - please get help.

  • 113 votes
#1.1 - Thu Jan 26, 2012 1:08 PM EST

Medical doctors HAVE explained it and the explanation they’ve given is an excellent one. There are countless documented cases of similar manifestations of mass hysteria. In fact, I would go so far as to say there is nothing at all mysterious about this (at least to those that are familiar with conversion disorder).

To put it another way, current medical science can explain the symptoms. There is no need to postulate mystical, paranormal phenomena to account for it.

  • 39 votes
#1.2 - Thu Jan 26, 2012 1:22 PM EST

Have these girls seen an ACUPUNCTURIST who prescribes Chinese herbs? My daughter developed muscular tics in first grade suddenly and she has taken a combination of Chinese herbs ever since that have dramatically reduced her symptoms. I can still tell that she has slight tics or nuances but the average person would never know. At times they heighten and I think it is when she is under added stress or is going through a growth spurt but they have been our saving grace. Neither her pediatrician nor her neurologist could figure anything out but this has worked--PLEASE TRY THIS OPTION!

  • 8 votes
Reply#2 - Thu Jan 26, 2012 11:55 AM EST

In the majority of cases, motor and verbal tics are transient in nature. How do you know that it was acupuncture that resulted in the improvement rather than (as is so often the case) transient tics simply running their course?

  • 9 votes
#2.1 - Thu Jan 26, 2012 1:25 PM EST
Comment author avatartaxman-3339924Expand Comment Comment collapsed by the community

If acupuncture works at all, it is only because of the placebo effect.

  • 25 votes
#2.2 - Thu Jan 26, 2012 1:32 PM EST

I would consider having the tested for strep. There is a disorder called PANDAS (Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus. When infected with strep, the antibodies do not attack the strep, but rather the brain causing tics and/or OCD symptoms. The kids usually don't even feel sick, but can test positive. Unfortunately, my family learned of this through experience.

  • 60 votes
Reply#3 - Thu Jan 26, 2012 11:56 AM EST

This is so fascinating...has anyone ruled out drugs or diet pills??? This is never mentioned within any of the news coverage... I certainly would hope so. My thoughts go out to these young women and their families...I hope you find answers soon!

  • 20 votes
Reply#4 - Thu Jan 26, 2012 12:43 PM EST

Did these girls get vaccinated recently, take similar medication, or use common skin care or beauty products? What about feminine products?

  • 28 votes
Reply#5 - Thu Jan 26, 2012 1:08 PM EST
Comment author avatarChemack56-2587500Expand Comment Comment collapsed by the community

They're obviously faking it. Threaten to take away their cell phones and facebook and you'll see how fast they're "cured".

  • 14 votes
Reply#6 - Thu Jan 26, 2012 1:14 PM EST

By all means enlighten us. We’d love to know how someone with no professional training is able to offer a better diagnosis WITHOUT SEEING THE PATIENTS than highly trained medical professionals that HAVE seen the patients.

  • 18 votes
#6.1 - Thu Jan 26, 2012 1:26 PM EST

Still voting it has something to do with the 1970 Lehigh Valley Railroad spill of trichloroethene in the township. It can plume in groundwater and has suspected neurotoxicity links.

  • ^ Kasarskis EJ et al. (Feb 2009). "Clinical aspects of ALS in Gulf War Veterans". Amyotroph Lateral Scler. 10 (1): pp. 35–41. PMID 18792848.
  • ^ Gash DM. et al. (Feb 2008). "Trichloroethylene: Parkinsonism and complex 1 mitochondrial neurotoxicity". Ann Neurol. 63 (2): pp. 184–92. PMID 18157908.
    • 53 votes
    Reply#7 - Thu Jan 26, 2012 1:38 PM EST